先天性門脈体循環シャント国際登録（IRCPSS）

基本情報

NCT ID

NCT06041906

ステータス

招待制

試験のフェーズ

-

試験タイプ

観察

目標被験者数

500

治験依頼者名

University Hospital, Geneva

概要

Congenital Portosystemic Shunt (CPSS) is a rare condition important by the multiplicity and severity of associated complications. CPSS is venous anomaly in which blood coming from the intestines only partially passes through the liver. This leads to the accumulation of potentially toxic factors that cause systemic effects. Complications vary among the individuals, and currently, it is challenging to predict which individuals will develop severe complications. The IRCPSS registry is established with the aim of centralizing detailed clinical follow-up and biological information from participants around the world who suffer from Congenital Portosystemic Shunt (CPSS). A multidisciplinary consortium of experts is collaborating to enhance our understanding of the prevalence, natural history, individual risks, and physiopathology of the disease through the IRCPSS registry.

対象疾患

介入

依頼者（Sponsor）

実施施設 (1)